Janet L. Hieshetter

Executive Director, Dystonia Medical Research Foundation (DMRF) 

Janet L. Hieshetter has been the Executive Director of the Dystonia Medical Research Foundation (DMRF) since 2004. Ms. Hieshetter leads this organization that provides funding for dystonia research and works to collaborate with other patient advocacy organizations to provide resources for the scientific community. Prior to her work with the DMRF, Ms. Hieshetter served as Development Director for Trilogy, Inc., a mental health organization; Senior Director of Education for the National Osteoporosis Foundation, and Director of Field Services at the Alzheimer’s Association. Ms. Hieshetter is currently Chairperson of the Board of Directors of the American Brain Coalition, Co-chair of the Coalition of Patient Advocacy Groups of the Office of Rare Disease Research, and a member of the Executive Committee of the Dystonia Coalition.