Overview
NINDS is a member of the Muscular Dystrophy Coordinating Committee (MDCC), a Federal Advisory Committee including NIH institutes, other Federal agencies, and patient advocates. The MDCC identifies the many challenges confronting people with muscular dystrophy and their families and coordinates efforts to address them. In 2005, the MDCC collected and integrated the recommendations of muscular dystrophy researchers, physicians, patients, family members, and other stakeholders into the Action Plan for the Muscular Dystrophies. The Action Plan was revised and updated in 2015, and outlines priority needs to improve treatments and reduce disease burden for all forms of muscular dystrophy. This plan is meant to serve as a blueprint for research across the entire muscular dystrophy community.
2015 MDCC Action Plan for the Muscular Dystrophies
Muscular Dystrophy action plan:
Publication: The muscular dystrophy coordinating committee action plan for the muscular dystrophies.