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ICARE Member Organizations and Primary Representatives

National Institutes of Health (NIH)

*National Institute of Neurological Disorders and Stroke (NINDS)* Story C. Landis, Ph.D., ICARE Chair Director, NINDS	*National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)* Joan A. McGowan, Ph.D. Director, Division of Musculoskeletal Diseases
Brandy E. Fureman, Ph.D. Program Director, Epilepsy Channels, Synapses, and Neural Circuits Cluster	*National Institute on Alcohol Abuse and Alcoholism (NIAAA)* Qi-Ying Liu, M.D., M.Sci. Division of Neuroscience and Behavior
*National Institute of Child Health and Human Development (NICHD)* Ljubisa Vitkovic, Ph.D. Intellectual and Developmental Disabilities (IDD) Branch	*National Institute on Drug Abuse (NIDA)* Roger Sorensen, Ph.D., M.P.A. Division of Basic Neuroscience and Behavioral Research, Functional Neuroscience Research Branch
*National Human Genome Research Institute (NHGRI)* Jonathan M. Gitlin, Ph.D. Policy & Program Analysis Branch	*National Heart, Lung and Blood Institute (NHLBI)* David A. Lathrop, Ph.D., FAHA Deputy Chief, Heart Failure & Arrhythmia Branch Division of Cardiovascular Sciences
*National Institute of Mental Health (NIMH)* Douglas L. Meinecke, Ph.D. Clinical Neuroscience Research Branch	*National Institute on Aging (NIA)* Bradley C. Wise, Ph.D. Chief, Neurobiology of Aging Branch, Division of Neuroscience
*National Institute of Nursing Research (NINR)* Joan Wasserman, Dr.P.H., M.B.A., R.N. Section on Neuroscience, Genetics, & Symptom Management	*Fogarty International Center (FIC)* Kathleen Michels, Ph.D. Division of International Training and Research
*Office of Rare Diseases Research (ORDR)* David J. Eckstein, Ph.D. Senior Health Scientist Administrator

Other Federal Participants

Centers for Disease Control and Prevention (CDC) David J. Thurman, M.D., M.P.H. National Center for Chronic Disease Prevention & Health Promotion	*Department of Defense (DOD)* Kenneth C. Curley, M.D. Neurotrauma Research Coordinator, Combat Casualty Care Directorate, U.S. Army Medical Research and Materiel Command
*Department of Health and Human Services (HHS)* Wanda K. Jones, Dr.P.H. Principal Deputy Assistant Secretary for Health	*Food and Drug Administration (FDA)* Russell Katz, M.D. Director, Division of Neurology Products Center for Drug Evaluation and Research
*Department of Veterans Affairs (VA)* Robert L. Ruff, M.D., Ph.D. National Director for Neurology

Epilepsy Research Community

*American Epilepsy Society (AES)* Frances E. Jensen, M.D. President (2012) Children's Hospital Boston	*Epilepsy Research Benchmarks Stewards* Daniel H. Lowenstein, M.D., Stewards chair University of California, San Francisco
*Epilepsy Study Consortium* Jacqueline A. French, M.D. New York University Medical Center

Epilepsy Patient Advocacy Organizations

*Citizens United for Research in Epilepsy (CURE)* Susan Axelrod President and Founder	*Epilepsy Foundation (EF)* Tracey Casteuble Senior Director of Research
*Tuberous Sclerosis Alliance (TS Alliance)* Stephen L. Roberds, Ph.D Chief Scientific Officer	Vision 20/20 (representing several epilepsy organizations) Ilene Penn Miller, 2012 liaison Hope for Hypthalamic Hamartomas

Last updated June 5, 2012