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ICARE Member Organizations and Primary Representatives

National Institutes of Health (NIH)

National Institute of Neurological Disorders and Stroke (NINDS)
Story C. Landis, Ph.D., ICARE Chair
Director, NINDS
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Brandy E. Fureman, Ph.D.
Program Director, Epilepsy
Channels, Synapses, and Neural Circuits Cluster
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
National Institute of Child Health and Human Development (NICHD) National Institute on Drug Abuse (NIDA)
National Human Genome Research Institute
National Heart, Lung and Blood Institute (NHLBI)
National Institute of Mental Health (NIMH) National Institute on Aging (NIA)
National Institute of Nursing Research (NINR) Fogarty International Center (FIC)
Office of Rare Diseases Research (ORDR)  

Other Federal Participants

Centers for Disease Control and Prevention
Department of Defense (DOD)
Department of Health and Human Services
Food and Drug Administration (FDA)
Department of Veterans Affairs (VA)  

Epilepsy Research Community

American Epilepsy Society (AES) Epilepsy Research Benchmarks Stewards
Epilepsy Study Consortium  

Epilepsy Patient Advocacy Organizations

Citizens United for Research in Epilepsy
Epilepsy Foundation (EF)
Tuberous Sclerosis Alliance (TS Alliance)
Vision 20/20
(representing several epilepsy organizations)

Last updated September 30, 2013