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ICARE Member Organizations and Primary Representatives

National Institutes of Health (NIH)

National Institute of Neurological Disorders and Stroke (NINDS)
Walter Koroshetz, MD, ICARE Chair
Acring Director, NINDS
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Joan A. McGowan, PhD
Director, Division of Musculoskeletal Diseases
Brandy E. Fureman, Ph.D.
Program Director, Epilepsy
Channels, Synapses, and Neural Circuits Cluster

National Institute on Alcohol Abuse and Alcoholism (NIAAA)
Qi-Ying Liu, MD, MSci
Division of Neuroscience and Behavior
National Institute of Child Health and Human Development (NICHD)
Melissa Parisi, PhD
Branch Chief of the Intellectual and Developmental Disabilities
National Institute on Drug Abuse (NIDA)
Roger Sorensen, PhD, MPA
Division of Basic Neuroscience and Behavioral Research, Functional Neuroscience Research Branch
National Human Genome Research Institute
Jonathan M. Gitlin, PhD
Policy & Program Analysis Branch
National Heart, Lung and Blood Institute (NHLBI)
David A. Lathrop, PhD, FAHA
Deputy Chief, Heart Failure & Arrhythmia Branch, Division of Cardiovascular Sciences
National Institute of Mental Health (NIMH)
Douglas L. Meinecke, PhD
Clinical Neuroscience Research Branch
National Institute on Aging (NIA)
Bradley C. Wise, PhD
Chief, Neurobiology of Aging Branch, Division of Neuroscience
National Institute of Nursing Research (NINR)
Lois Tully, PhD
Program Director
National Institute of Biomedical Imaging and Bioengineering (NIBIB)
Steven Krosnick, MD
Program Director
Office of Rare Diseases Research (ORDR)
David J. Eckstein, PhD
Senior Health Scientist Administrator
Fogarty International Center (FIC)
Kathleen Michels, PhD
Division of International Training and Research

Other Federal Partners

Centers for Disease Control and Prevention
Rosemarie Kobau, MPH, MAPP
Epilepsy Program Team Lead, CDC Epilepsy Program
Arthritis, Epilepsy and Well-Being Branch (AEWB)
National Center for Chronic Disease Prevention
and Health Promotion (NCCDPHP)

Stuart K. Shapira, MD, PhD
Chief Medical Officer and Associate Director for Science
National Center on Birth Defects and
Developmental Disabilities (NCBDDD)

Department of Veterans Affairs (VA)
Glenn Graham, MD
Acting National Director for Neurology

Paul Rutecki
Acting National Director, VA Epilepsy Centers of Excellence

Food and Drug Administration (FDA)
Norman Hershkowitz, MD, PhD
Team Leader for antiepileptic drugs
Center for Drug Evaluation and Research (CDER)

Centers for Medicare and Medicaid Services (CMS)
Joseph D. Hutter, MD, MA
LCDR, US Public Health Service
CMS Center for Clinical Standards and Quality
Health Resources and Services Administration (HRSA)
Sadie Silcott, MBA, MPH
Public Health Analyst
Department of Defense (DOD)
Anthony Pacifico, PhD
Congressionally Directed Medical Research Programs, 
Epilepsy Research Program

Nongovernmental Organizations

American Epilepsy Society (AES)
Amy Brooks Kayal, MD, PhD
President (2015)
University of Colorado
AES/NINDS Epilepsy Research Benchmarks Stewards
Raymond J. Dingledine, PhD
AES/NINDS Benchmark Stewards Committee Chair
Emory University
Citizens United for Research in Epilepsy
Susan Axelrod
President and Founder
Dravet Syndrome Foundation
Abigail Hemani
Board of Directors President

Mary Anne Meskis
Executive Director
Epilepsy Foundation (EF)
Jan Buelow, PhD, FAAN
Vice President of Research & Programs
Epilepsy Leadership Council (ELC, formerly Vision 20-20 - representing multiple epilepsy organizations)
Barbara Kroner, PhD
Board Member, ELC; Aicardi Syndrome Foundation
Epilepsy Study Consortium
Dennis Dlugos, MD
Children’s Hospital of Philadelphia
Patient Centered Outcomes Research Institute (PCORI)
Sarita Wahba MSPH, MS
Program Officer, CER Methods and Infrastructure
Tuberous Sclerosis Alliance (TS Alliance)Kari Luther Rosbeck
President and Chief Executive Officer

Last Modified October 18, 2015