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ICARE Member Organizations and Primary Representatives



National Institutes of Health (NIH)

National Institute of Neurological Disorders and Stroke (NINDS)
Story C. Landis, Ph.D., ICARE Chair
Director, NINDS
 National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Brandy E. Fureman, Ph.D.
Program Director, Epilepsy
Channels, Synapses, and Neural Circuits Cluster
 National Institute on Alcohol Abuse and Alcoholism (NIAAA)
National Institute of Child Health and Human Development (NICHD) National Institute on Drug Abuse (NIDA)
National Human Genome Research Institute
(NHGRI)		 National Heart, Lung and Blood Institute (NHLBI)
National Institute of Mental Health (NIMH) National Institute on Aging (NIA)
National Institute of Nursing Research (NINR) Fogarty International Center (FIC)
Office of Rare Diseases Research (ORDR)  


Other Federal Participants

Centers for Disease Control and Prevention
(CDC)		 Department of Defense (DOD)
Department of Health and Human Services
(HHS)		 Food and Drug Administration (FDA)
Department of Veterans Affairs (VA)  


Epilepsy Research Community

American Epilepsy Society (AES) Epilepsy Research Benchmarks Stewards
Epilepsy Study Consortium  


Epilepsy Patient Advocacy Organizations

Citizens United for Research in Epilepsy
(CURE)		 Epilepsy Foundation (EF)
Tuberous Sclerosis Alliance (TS Alliance)
 Vision 20/20
(representing several epilepsy organizations)

Last updated September 30, 2013