|Judith Hoyer Lecture on Epilepsy|
|Anticonvulsant Screening Program (ASP)
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|Brandy Fureman, Ph.D.
Program Director, Channels Synapses & Circuits Cluster
The second annual Interagency Collaborative to Advance Research in Epilepsy (ICARE) meeting convened on June 27, 2011 to provide an occasion for member organizations to share information about ongoing and planned epilepsy research activities, initiatives and resources. The meeting also offered a forum to discuss ongoing challenges and opportunities. Dr. Story Landis (NINDS Director, ICARE Chair) opened the meeting with an overview of the group’s history and goals. Emphasis was placed on the importance of building new and strengthening existing partnerships between member organizations. Dr. Landis highlighted several current and planned initiatives by the NINDS that promote epilepsy research, including the Epilepsies EUREKA program, the targeted Translational Program for Resistant Epilepsy and Epileptogenesis, and the new Epilepsy Centers without Walls Program.
The presentations began with a summary of 2010 advances in the Epilepsy Benchmarks research areas. Dr. Anne Berg, one of the Epilepsy Benchmarks stewards, highlighted areas of progress and ongoing challenges and opportunities. Individual ICARE member organizations then presented brief updates of ongoing and planned research initiatives, challenges and opportunities for collaboration. The current efforts of Vision 20/20 and the Institute of Medicine study on The Public Health Dimensions of the Epilepsies were also discussed. Slideshow presentations from the meeting are available below and include more detailed information. The group discussions highlighted a number of issues relevant for the epilepsy research and patient communities including:
The afternoon session focused on Sudden Unexpected Death in Epilepsy (SUDEP) and began with a discussion on the current state of SUDEP research by Dr. Sam Wiebe and a summary of the review goals established during the 2008 NINDS workshop on SUDEP and the AES/EF SUDEP Task Force by Dr. Elson So. Ongoing and planned initiatives focused on advancing research into SUDEP were then presented by the ICARE member organizations. More detailed information is available in the slideshows below. Some of the discussion highlights included:
(To view or print the following PDF presentations, download the free Adobe Reader).
Last updated April 18, 2014