TwitterRSSFacebookDirectors Blog
  Disorders A - Z:   A    B   C    D    E    F    G    H    I    J    K    L    M    N    O    P    Q    R    S    T    U    V    W    X    Y    Z

You Are Here: Home  »  Research  »  Epilepsy Research Web  »  Researchers  »  ICARE  » 

Skip secondary menu

ICARE: Meeting Agenda - June 27, 2011

Research @ NINDS
Judith Hoyer Lecture on Epilepsy

Curing the Epilepsies 2013: Pathways Forward

Resource Links
Anticonvulsant Screening Program (ASP)

NIH RePORTER is an electronic tool that allows users to search a repository of NIH-funded research projects and access publications and patents resulting from NIH funding.

Epilepsy Clinical Trials

Resources for Scientists


Brandy Fureman, Ph.D.
Program Director, Channels Synapses & Circuits Cluster

Deborah Hirtz, M.D.
Program Director, Division of Extramural Research

John Kehne, Ph.D.
Program Director, Anticonvulsant Screening Program

Randall Stewart, Ph.D.
Program Director, Extramural Research Program

Vicky Whittemore, Ph.D.
Program Director, Channels, Synapses & Neural Circuits Cluster

Interagency Epilepsy Working Group Meeting

June 27, 2011

NIH Campus

9000 Rockville Pike, Bethesda, MD

Building 31, 6th floor C wing, conference room 6

Hosted by the National Institute of Neurological Disorders and Stroke (NINDS)


Morning session: Information sharing and opportunities for collaboration


8:00 a.m.
Registration and light refreshments

8:10 a.m.
Welcome and meeting goals:
Story Landis, PhD (Director, NINDS)

8:20 a.m.
Introduction of Participants

8:40 a.m.
Epilepsy Benchmarks: summary of 2010 advances

9:20 a.m.
NINDS/NIH Research Portfolio Presentation

9:40 a.m.
HHS Update on Epilepsy-related Activities

9:50 a.m.
DoD Research Portfolio Presentation

10:00 a.m.
American Epilepsy Society Research Portfolio Presentation

10:10 a.m.
Citizen's United for Research in Epilepsy Research Portfolio Presentation

10:20 a.m.
---- Break ----

10:35 a.m.
Tuberous Sclerosis Alliance Research Portfolio Presentation

10:45 a.m.
CDC Research Portfolio Presentation

10:55 a.m.
Epilepsy Foundation Research Portfolio Presentation

11:05 a.m.
Vision 20/20

11:15 a.m.
Epilepsy Therapy Project Research Portfolio Presentation

11:25 a.m.
FDA Research Portfolio Presentation

11:35 a.m.
Discussion: research needs and opportunities for organizational collaboration

12:15 p.m.
---- Lunch (on your own) ----

Afternoon Session: Focus on Sudden Unexpected Death in Epilepsy (SUDEP)

1:15 p.m.
Current state of SUDEP research (Sam Wiebe)

2:00 p.m.
Review goals established during the 2008 NINDS workshop and by the AES/EF SUDEP taskforce (Elson So)

2:15 p.m.
Ongoing and planned initiatives
Federal Agencies:
  • NINDS (Brandy Fureman) 15 minutes
  • CDC (David Thurman) 25 minutes

3:00 p.m.
---- Break ----

3:15 p.m.
Ongoing and planned initiatives, continued
  • AES/EF task force activities (Elson So) 15 minutes
  • CURE (Gardiner Lapham) 10 minutes
  • ETP (Joyce Cramer) 10 minutes

3:50 p.m.
Discussion: assess progress and identify remaining needs and opportunities

4:30 p.m.
Wrap-up and Conclusions from the full day
Discussion: future ICARE activities and member interactions

5:00 p.m.

Last Modified October 20, 2015