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ICARE: Meeting Agenda - June 27, 2011

Research @ NINDS
Epilepsy
Highlights
Judith Hoyer Lecture on Epilepsy

Curing the Epilepsies 2013: Pathways Forward

Resource Links
Anticonvulsant Screening Program (ASP)

NIH RePORTER is an electronic tool that allows users to search a repository of NIH-funded research projects and access publications and patents resulting from NIH funding.

Epilepsy Clinical Trials

Resources for Scientists

MedlinePlus

Contacts
Brandy Fureman, Ph.D.
Program Director, Channels Synapses & Circuits Cluster
furemanb@mail.nih.gov

Deborah Hirtz, M.D.
Program Director, Division of Extramural Research
dh83f@nih.gov

John Kehne, Ph.D.
Program Director, Anticonvulsant Screening Program
john.kehne@nih.gov

Randall Stewart, Ph.D.
Program Director, Extramural Research Program
rs416y@nih.gov

Vicky Whittemore, Ph.D.
Program Director, Channels, Synapses & Neural Circuits Cluster
vicky.whittemore@nih.gov

Interagency Epilepsy Working Group Meeting

June 27, 2011

NIH Campus

9000 Rockville Pike, Bethesda, MD

Building 31, 6th floor C wing, conference room 6

Hosted by the National Institute of Neurological Disorders and Stroke (NINDS)

Agenda

Morning session: Information sharing and opportunities for collaboration

Date
Activity

8:00 a.m.
Registration and light refreshments

8:10 a.m.
Welcome and meeting goals:
Story Landis, PhD (Director, NINDS)

8:20 a.m.
Introduction of Participants

8:40 a.m.
Epilepsy Benchmarks: summary of 2010 advances

9:20 a.m.
NINDS/NIH Research Portfolio Presentation

9:40 a.m.
HHS Update on Epilepsy-related Activities

9:50 a.m.
DoD Research Portfolio Presentation

10:00 a.m.
American Epilepsy Society Research Portfolio Presentation

10:10 a.m.
Citizen's United for Research in Epilepsy Research Portfolio Presentation

10:20 a.m.
---- Break ----

10:35 a.m.
Tuberous Sclerosis Alliance Research Portfolio Presentation

10:45 a.m.
CDC Research Portfolio Presentation

10:55 a.m.
Epilepsy Foundation Research Portfolio Presentation

11:05 a.m.
Vision 20/20

11:15 a.m.
Epilepsy Therapy Project Research Portfolio Presentation

11:25 a.m.
FDA Research Portfolio Presentation

11:35 a.m.
Discussion: research needs and opportunities for organizational collaboration

12:15 p.m.
---- Lunch (on your own) ----

Afternoon Session: Focus on Sudden Unexpected Death in Epilepsy (SUDEP)

1:15 p.m.
Current state of SUDEP research (Sam Wiebe)

2:00 p.m.
Review goals established during the 2008 NINDS workshop and by the AES/EF SUDEP taskforce (Elson So)

2:15 p.m.
Ongoing and planned initiatives
Federal Agencies:
  • NINDS (Brandy Fureman) 15 minutes
  • CDC (David Thurman) 25 minutes

3:00 p.m.
---- Break ----

3:15 p.m.
Ongoing and planned initiatives, continued
Non-governmental:
  • AES/EF task force activities (Elson So) 15 minutes
  • CURE (Gardiner Lapham) 10 minutes
  • ETP (Joyce Cramer) 10 minutes

3:50 p.m.
Discussion: assess progress and identify remaining needs and opportunities

4:30 p.m.
Wrap-up and Conclusions from the full day
Discussion: future ICARE activities and member interactions

5:00 p.m.
Adjourn


Last updated April 18, 2014