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Data Sharing

Data sharing is essential for expedited translation of research results into knowledge, products and procedures to improve human health.  To ensure that future research can build on previous efforts and discoveries, the National Institutes of Health (NIH) has developed a data sharing policy that went into effect beginning October 1, 2003, for applicants seeking NIH funding of $500,000 or more in direct costs in any one year.  The policy expects final research data, especially unique data, from NIH-supported research efforts to be made available to other investigators.  It includes data from:

  • Basic research
  • Clinical studies
  • Surveys
  • Other types of research

Data sharing applies to human subjects and laboratory research.  In some instances, it may include data not produced with NIH funding but used in an NIH-supported activity.

Archived Clinical Research Datasets

NIH Data Sharing Policy


Questions? Please email the NINDS Clinical Research liaison at

Last Modified October 18, 2015