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Spinal Muscular Atrophy (SMA) Biomarkers in the Immediate Postnatal Period of Development Participating Clinical Study Sites

Participating clinical study sites are:


  • Boston Children’s Hospital, Boston, MA
  • Children’s National Medical Center, Washington, DC
  • Columbia University Medical Center, New York, NY
  • State University of New York Upstate Medical Center, Syracuse, NY
    • Principal Investigator: Klaus Werner, MD, PhD
    • Coordinator: Tanya Perry, BS


  • Northwestern University, Chicago, IL
    • Children’s Memorial Hospital, Chicago, IL
    • Principal Investigator: Nancy Kuntz, MD
    • Coordinator: Lauren Webb, BA


  • Ohio State University, Columbus, OH (site of the protocol Principal Investigator)


  • Washington University in St. Louis School of Medicine, Saint Louis, MO


  • Emory University, Atlanta, GA
    • Children’s Hospital of Atlanta, Atlanta, GA
    • Principal Investigator: Maurice Sholas, MD PhD
    • Coordinator: Rian Thornton, BS, CCRC


  • University of Texas Southwestern Medical Center, Dallas, TX
    • Children’s Medical Center of Dallas, Dallas, TX
    • Principal Investigator: Susan T. Iannaccone, MD
    • Coordinator: Mariam Andersen, MA, CCRP
  • Vanderbilt University, Nashville, TN


  • University of California – Davis, Davis, CA
  • University of California – Los Angeles, Los Angeles, CA
    • Principal Investigator: Perry Shieh, MD, PhD
    • Coordinator: Angel Hu, BA
  • University of Colorado – Denver, Aurora, CO
  • University of Utah, Salt Lake City, UT
  • Oregon Health and Science University, Portland, OR
    • Dorenbecher Children’s Hospital, Portland, OR
    • Principal Investigator: Erika Finanger, MD
    • Coordinator: Rhonda Muhly, CCRC

Last Modified September 14, 2012