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NINDS Workshop: Sudden Unexpected Death in Epilepsy (SUDEP)


Hilton Rockville Hotel and Executive Meeting Center
Rockville, Maryland
November 12–14, 2008

Participant List

Michael J. Ackerman, M.D., Ph.D.*
Director
Windland Smith Rice Sudden Death
Genomic Laboratory
Long QT Syndrome Clinic
Mayo Clinic

Anne E. Anderson, M.D.*
Assistant Professor
Departments of Pediatrics, Neurology, and
Neuroscience
Baylor College of Medicine

Joan K. Austin, D.N.S., R.N., FAAN**
Distinguished Professor and Sally Reahard
Chair
Indiana University School of Nursing

Jeffrey R. Buchhalter, M.D., Ph.D., FAAN**
Director
Comprehensive Pediatric Epilepsy Program
Phoenix Children's Hospital

Debbie Carr, M.Ed.**
Vice President
National Programs and Research
Epilepsy Foundation

Tracy Chen, Ph.D., DABT* 
Scientific Research Specialist 
National Institute of Neurological
Disorders and Stroke
National Institutes of Health

Nancy S. Collins, M.D.**
Epilepsy.com

Rebecca E. Desrocher, M.S.** 
Health Program Specialist 
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Robert Finklestein, Ph.D.*
Director
Extramural Division
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Sandy K. Finucane, J.D.**
Vice President, Legal and Government
Affairs
Epilepsy Foundation

Brandy Fureman, Ph.D.* 
Clinical Research Project Manager 
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Jon Giftakis, Ph.D.** 
Principal Scientist 
Medtronic, Inc.

Alica Goldman, M.D., Ph.D.*
Assistant Professor
Baylor College of Medicine

Carl E. Hunt, M.D.*
Director of the National Center on Sleep
Disorders Research
National Heart, Lung, and Blood Institute
National Institutes of Health

Margaret Jacobs* 
Epilepsy Program Director 
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Andres M. Kanner, M.D.**
Professor of Neurological Sciences and
Psychiatry
Associate Director, Section of Epilepsy
Rush Medical College and Rush University Medical Center

Melinda Kelley, Ph.D.*
Senior Science Advisor
Office of Science Policy and Planning
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Erika D. Mabry, M.A.**
Public Health Education Program Manager
Epilepsy Foundation

Georgia Montouris, M.D.** 
Assistant Professor of Neurology 
Boston University School of Medicine 
Director, Epilepsy Services
Boston Medical Center

Martha Morrell, M.D.* 
Chief Medical Officer 
NeuroPace, Inc.

Suzan Nadi, Ph.D.* 
Scientific Review Officer Center for Scientific Review 
National Institutes of Health

Lina Nashef, MBChB, M.D., FRCP*
Department of Neurology
King's College Hospital

Lynn Rundhaugen, M.P.H.** 
Health Program Specialist 
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Martin A. Samuels, M.D.*
Chief of Neurology
Brigham and Women's Hospital
Professor of Neurology
Harvard Medical School

Steven C. Schachter, M.D.*
Professor of Neurology
Harvard Medical School/Beth Israel
Deaconess Medical Center

Paul L. Schraeder, M.D.* 
Emeritus Professor of Neurology 
Drexel University College of Medicine

Elson L. So, M.D.*
Professor of Neurology
Mayo Clinic College of Medicine

James P. Stables, M.S., R.Ph.*
Program Director
National Institute of Neurological
Disorders and Stroke
National Institutes of Health

Alice Marie Stevens, M.Ed.** 
Director
Public Education Programs 
Epilepsy Foundation

Mark Stewart, M.D., Ph.D.*
Professor of Physiology/Pharmacology and Neurology
SUNY Downstate Medical Center

Nancy Temkin, Ph.D.*
Professor
University of Washington

Jon Werder, MSEE**
Senior Product Development Manager
Medtronic, Inc.

Jacquelyn L. Bainbridge, Pharm.D.**
Associate Professor
University of Colorado Denver

Steven L. Bealer, Ph.D.*
Professor
Department of Pharmacology and
Toxicology
University of Utah

William Benzing, Ph.D.*
Scientific Review Officer
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Anne T. Berg, Ph.D.* 
Research Professor 
Department of Biology 
Northern Illinois University 

Jeanne H. Donalty**
Secretary, Board of Directors
Citizens United for Research in Epilepsy

Elizabeth J. Donner, M.D., FRCPC*
Division of Neurology Hospital for Sick Children 
University of Toronto

Susan Duncan, M.D., FRCP**
Consultant Neurologist
National Health Service

Wendy S. Edlund, M.S.** 
Associate Director
Clinical Practice Center for Health Policy
American Academy of Neurology

Carl L. Faingold, Ph.D.*
Professor of Pharmacology and Neurology Chair
Department of Pharmacology 
Southern Illinois University School of Medicine

Nina Graves, Pharm.D.* 
Epilepsy Core Team Leader 
Medtronic, Inc.

Jane Hanna, M.A., B.C.L.**
Epilepsy Bereaved

Cynthia L. Harden, M.D.**
Professor of Neurology
University of Miami Epilepsy Center

Lawrence J. Hirsch, M.D.*
Associate Clinical Professor of Neurology
Columbia University
Columbia Comprehensive Epilepsy Center

Deborah Hirtz, M.D. 
Program Director 
Clinical Trials
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Steven J. Korn, Ph.D.*
Director
Training and Career Development Office
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Walter J. Koroshetz, M.D.*
Deputy Director
Office of the Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Gardiner Lapham, R.N., M.P.H.**

Claire M. Lathers, Ph.D., F.C.P.*
Clinical Pharmacologist

Fran London, M.S., R.N.** 
Health Education Specialist 
The Emily Center
Phoenix Children’s Hospital

Maromi Nei, M.D.*
Associate Professor of Neurology
Jefferson Epilepsy Center

Jeffrey L. Noebels, M.D., Ph.D.*
Professor of Neurology, Neuroscience, and
Molecular and Human Genetics
Baylor College of Medicine

Rosemary Panelli, M.P.H.**
Joint Epilepsy Council of Australia

Patricia H. Price, D.O.** 
Epilepsy Program Coordinator 
Centers for Disease Control and Prevention

George Richerson, M.D., Ph.D.*
Professor of Neurology and Cellular and
Molecular Physiology
Yale University

Stephan Schuele, M.D., M.P.H.*
Assistant Professor of Neurology
Director, Comprehensive Epilepsy Center
Northwestern University 
Feinberg School of Medicine

Patricia O. Shafer, R.N., M.N.**
Epilepsy Nurse Specialist
Beth Israel Deaconess Medical Center

W. Douglas Sheffield, V.M.D., Ph.D.* 
Vice President of Clinical Research 
NeuroVista

Win K. Shen, M.D.*
Cardiologist
Mayo Clinic

Tess Sierzant, M.S., R.N., ACNS-BC** 
Neuroscience Clinical Nurse Specialist 
HealthEast Care System

David Thurman**
Division of Adult and Community Health
Centers for Disease Control and Prevention

Torbjorn Tomson, M.D., Ph.D.*
Professor
Department of Neurology 
Karolinska University Hospital 
Karolinska Institute

Matteo Vatta, Ph.D.*
Assistant Professor of Pediatrics
Baylor College of Medicine

Christina Vert, M.S.* 
Health Program Specialist 
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Braxton B. Wannamaker, M.D.*
President
Epilepsy Services and Research, Inc.


Last updated August 3, 2011