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Funding News - Persons with Syringomyelia Sought for Study

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  • The information on this page is for historical and research purposes only.
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NINDS is seeking persons with syringomyelia to participate in a research study. This study will follow the natural course of and effects of surgery for syringomyelia.

Participants must be 18 years of age or older and have syringomyelia or Chiari I malformation.  Persons who cannot undergo MRI scanning, have bleeding problems, or are pregnant are not eligible.  The study will take place at the NIH Clinical Center in Bethesda, MD, and includes annual outpatient visits over a 5 year period.

Evaluations in this study include health histories, physical examinations, and magnetic resonance imaging (MRI) scans of the brain and spine.  Participants with progressive symptoms from their syringomyelia will be offered surgical treatment, which will require a 7-10 day hospital admission. There is no charge for study-related tests.  Travel costs may be reimbursed.

For more information, contact the Patient Recruitment Office at 800-411-1222 or prpl@cc.nih.gov, or Gretchen Scott, RN, at 301-496-2921. Please refer to study number 10-N-0143.