NINDS is seeking persons with syringomyelia to participate in a research study. This study will follow the natural course of syringomyelia.
Participants must be 18 years of age or older and have syringomyelia, presyringomyelia, or Chiari I malformation without syringomyelia. Persons who cannot undergo magnetic resonance imaging (MRI) scanning, have bleeding problems, or are pregnant are not eligible. The study will take place at the NIH Clinical Center in Bethesda, MD, and requires participants to undergo annual outpatient visits over a 5-year period. Evaluations in this study include health histories, physical and neurological examinations, and MRI scans of the brain and spine. Participants with neurological progression will be offered surgical treatment. Participants with no neurological progression will not undergo surgery but will be followed to identify factors that may influence syringomyelia progression. There is no cost for study-related procedures. Travel costs may be reimbursed.
For more information, contact the Patient Recruitment Office at 800-411-1222, or via email at firstname.lastname@example.org, or Hetty DeVroom, RN, at 301-594-8111. Please refer to study number 10-N-0143.