NINDS scientists are seeking persons with neurofibromatosis type 2 (NF2) to participate in a research study to learn about NF2 tumor development and progression.
Study participants will have a thorough evaluation of their NF2-related tumors and how those tumors affect function (vision, walking, hearing, balance, etc.). All testing—which will include magnetic resonance imaging (MRI)—will be performed on an outpatient basis and will be repeated every 6 months.
Eligible persons must have a diagnosis of NF2 by established criteria or genetic testing, be 8 to 75 years old, and be able to have MRIs. Persons who are pregnant, or who have an allergy to MRI contrast or other medical conditions that would limit their ability to participate, may not be eligible.
The study will take place at the National Institutes of Health (NIH) Clinical Center in Bethesda, MD. There is no cost for study-related tests. Travel costs may be reimbursed.
For more information, contact the Patient Recruitment Office at 800-411-1222, or via email at firstname.lastname@example.org. Please refer to study number 08-N-0044.