Scientists at NINDS are seeking adults with amyotrophic lateral sclerosis (ALS) or primary lateral sclerosis (PLS) to participate in a research study to understand differences in how these disorders affect non-motor function. Participants must be over 18 years of age and have a diagnosis of probable ALS or PLS.
The study (06-N-0174) includes neuropsychological testing, a neuropsychiatric evaluation, EEG recordings during movement, and MRI imaging. Some patients may also be eligible to participate in a research study (02-N-0109) for developing an EEG-based brain-computer interface. Both studies are conducted at the NIH Clinical Center in Bethesda, MD.Participants spend several days undergoing testing in the outpatient clinics. All travel, lodging, and study-related expenses will be paid by the NIH.
For more information, physicians should send a referral letter and a copy of the patient's recent medical records to Dr. Mary Kay Floeter, c/o Ms. Michelle Bernal, NINDS, NIH, Building 10 CRC, Room 7-5680, 10 Center Drive MSC 1404, Bethesda, MD 20892-1404; telephone: 301-496-7428; fax: 301-402-8796.