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Funding News - Individuals with Amyotrophic Lateral Sclerosis or Primary Lateral Sclerosis Sought for Study

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  • The information on this page is for historical and research purposes only.
  • For the most current NINDS funding announcements, please see the NINDS list of Active Funding Initiatives or Follow Us on Twitter for the latest funding news.

Scientists at NINDS are seeking adults with amyotrophic lateral sclerosis (ALS) or primary lateral sclerosis (PLS) to participate in a research study to understand differences in how these disorders affect non-motor function. Participants must be over 18 years of age and have a diagnosis of probable ALS or PLS.

The study (06-N-0174) includes neuropsychological testing, a neuropsychiatric evaluation, EEG recordings during movement, and MRI imaging. Some patients may also be eligible to participate in a research study (02-N-0109) for developing an EEG-based brain-computer interface. Both studies are conducted at the NIH Clinical Center in Bethesda, MD.Participants spend several days undergoing testing in the outpatient clinics. All travel, lodging, and study-related expenses will be paid by the NIH.

For more information, physicians should send a referral letter and a copy of the patient's recent medical records to Dr. Mary Kay Floeter, c/o Ms. Michelle Bernal, NINDS, NIH, Building 10 CRC, Room 7-5680, 10 Center Drive MSC 1404, Bethesda, MD 20892-1404; telephone: 301-496-7428; fax: 301-402-8796.