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Funding News - Persons with Neurofibromatosis Type 2 Sought for Study

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  • The information on this page is for historical and research purposes only.
  • For the most current NINDS funding announcements, please see the NINDS list of Active Funding Initiatives or Follow Us on Twitter for the latest funding news.

Scientists at NINDS are seeking persons with neurofibromatosis type 2 (NF2) to participate in a research study to learn about NF2 tumor development and progression. 

Study participants will have a thorough evaluation of their NF2-related tumors and how those tumors affect function (vision, walking, hearing, balance, etc.).  All testing—which will include MRI—will be performed on an outpatient basis and will be repeated every 6 months.

Eligible persons must have a diagnosis of NF2 by established criteria or genetic testing, be 8 to 75 years old, and be able to have MRIs.  Persons who are pregnant, or who have an allergy to MRI contrast or other medical conditions that would limit their ability to participate, may not be eligible. 

The study will take place at the NIH Clinical Center in Bethesda, MD.  There is no charge for study-related tests.  Travel costs may be reimbursed.

For more information, contact the Patient Recruitment Office at 800-411-1222, or via email at  Please refer to study number 08-N-0044.