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FTD Agenda

Development of Clinical and Pathology Data Elements for Frontotemporal Lobe Dementia

February 2-3, 2010
Four Seasons Miami
Miami, Florida
Workshop    Participant List    Executive Summary


Tuesday, February 2, 2010

8:00 a.m.
8:30 a.m.
Opening Remarks and Roundtable Introductions
Dr. Walter Koroshetz NINDS, Dr. Tony Phelps NIA
8:35 a.m.
Welcome Remarks
Helen-Ann Comstock, Association for Frontotemporal Dementias
8:40 a.m.
Standardized Data Collection, Formulation to Implementation: A Collaborative Effort
Dr. Walter Kukull
9:00 a.m.
Breakout Group Meetings
Group 1: Genetics
Group 2: Pathology
Group 3: Neuropsychology
Group 4: Clinical
Group 5: Imaging
11:00 a.m.
11:15 a.m.
Clinical Working Group
Dr. David Knopman
12:45 p.m.
1:45 p.m.
Pathology Working Group
Dr. Dennis Dickson
3:15 p.m.
3:30 p.m.
Genetics Working Group
Dr. Bradley Boeve
4:45 p.m.
Neuropsychology Working Group
Dr. Bruce Miller
6:15 p.m.
Adjourn for Day
7:00 p.m.

Wednesday, February 3, 2010

8:00 a.m.
8:30 a.m.
Imaging Working Group
Dr. Howard Rosen
10:00 a.m.
10:15 a.m.
Next Steps
  • Process 
  • Timeline for Creation of Data Module 
  • Piloting of Module 
  • Utilization 
  • Evolving Terminology
12:00 p.m.

Last Modified October 18, 2015