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Intractable Childhood Epilepsy Alliance


Intractable Childhood Epilepsy Alliance
PO Box 365
6360 Shallowford Road
Lewisville,  NC  27023
Tel: 336-946-1570
Fax: 336-946-1571
Email: info@ice-epilepsy.org
http://www.ice-epilepsy.org

Description: The Intractable Childhood Epilepsy Alliance is a non-profit 501c3 organization dedicated to improving lives of children affected by intractable epilepsy through evidence-based information, advocacy for appropriate medical treatment including compassionate use and Orphan drug products, promotion of drug development, data collection through patient registries, and funding of research that will lead to a cure for intractable childhood epilepsies.



National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.