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National Fabry Disease Foundation


National Fabry Disease Foundation
4301 Connecticut Avenue, NW
Suite 404
Washington,  DC  20008-2369
Tel: 800-651-9131
Fax: 800-651-9135
Email: info@fabrydisease.org
http://www.fabrydisease.org



National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.