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Chiari & Syringomyelia Foundation

Chiari & Syringomyelia Foundation
29 Crest Loop
Staten Island,  NY  10312
Tel: 718-966-2593
Fax: 718-966-2593 (Call First)

Description: Nonprofit organization committed to disseminating accurate and current information about treatments for and best practices surrounding the management of Chiari malformation, syringomyelia & related cerebrospinal fluid disorders.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.