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Acid Maltase Deficiency Association (AMDA)


Acid Maltase Deficiency Association (AMDA)
P.O. Box 700248
San Antonio,  TX  78270
Tel: 210-494-6144
Fax: 210-490-7161
Email: tianrama@aol.com
http://www.amda-pompe.org

Description: National non-profit that funds research and promotes public awareness of Pompe disease.



National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.