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Myotonic Dystrophy Foundation


Myotonic Dystrophy Foundation
P.O. Box 29543
San Francisco,  CA  94129
Tel: 86-MYOTONIC 415-800-7777
Email: info@myotonic.org
http://www.myotonic.org/

Description: The Myotonic Dystrophy Foundation (MDF) is the world’s largest patient organization focused solely on myotonic dystrophy. Their mission, “Care and a Cure,” is to enhance the quality of life of people living with myotonic dystrophy, and advance research focused on treatments and a cure.



Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.