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Genetic Alliance

Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington,  DC  20008-2369
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553

Description: International coalition representing 600 consumer and professional organizations. Supports individuals and families with genetic conditions; educates the public; and advocates for consumer-informed public policies.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.