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National Fragile X Foundation

National Fragile X Foundation
2100 M Street, N.W.
Suite 170, Box 302
Washington,  DC  20087
Tel: 800-688-8765
Fax: 925-938-9315

Description: Provides support, education, awareness, research, and legislative advocacy for all Fragile X-associated Disorders including fragile X syndrome (FXS), fragile X-associated tremor/ataxia syndrome (FXTAS), and fragile X-associated primary ovarian insufficiency (FXPOI).

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.