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Share and Care Cockayne Syndrome Network, Inc.

Share and Care Cockayne Syndrome Network, Inc.
P.O. Box 282
Waterford,  VA  20197
Tel: 703-727-0404; 865-435-9777
Fax: 972-613-4590

Description: Non-profit organization that supports parents, publishes a newsletter and pamphlet, and sponsors an annual retreat.

Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.