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FRAXA Research Foundation [for Fragile X Syndrome]

FRAXA Research Foundation [for Fragile X Syndrome]
45 Pleasant Street
Newburyport,  MA  01950
Tel: 978-462-1866
Fax: 978-463-9985

Description: Funds research, sponsors education and support programs on Fragile X syndrome, the most common inherited cause of mental retardation and developmental disabilities.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.