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Coffin-Lowry Syndrome Foundation


Coffin-Lowry Syndrome Foundation
675 Kalmia Place, NW
Issaquah,  WA  98027
Tel: 425-427-0939 (M-F between 6pm and 9 pm PST)
Email: CoffinLowry@Gmail.com
http://clsf.info

Description: Clearinghouse for information on CLS. Provides a general forum for exchanging experiences, advice, and information with other CLS families. Works to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research in order to improve methods of social integration of CLS individuals.



Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.