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Canavan Foundation, Inc.

Canavan Foundation, Inc.
450 West End Avenue
New York,  NY  10024
Tel: 212-873-4640; 877-4-CANAVAN (422-6282)
Fax: 212-873-7449

Description: Works to educate target population about genetic screening available for Canavan disease and other Jewish genetic diseases, and supports research to find a treatment and cure for Canavan disease.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.