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Canavan Research Foundation

Canavan Research Foundation
88 Route 37
New Fairfield,  CT  06812
Tel: 203-746-2436
Fax: 203-746-3205

Description: All volunteer non-profit organization that funds research leading to treatments and or a cure for diseases of the brain. Currently funds research in gene therapy, stem cell therapy, and metabolic approaches. Offers information and sponsors parent support programs.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.