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Aicardi Syndrome Foundation

Aicardi Syndrome Foundation
P.O. Box 3202
St. Charles,  IL  60174
Tel: 800-374-8518

Description: Information gathering and sharing resource for professional and health care personnel and Aicardi syndrome families. Sponsors a biennial conference.

Organizations such as this one may focus on information, research, fundraising, advocacy and awareness programs, rehabilitation, or patient support. They are not part of the Federal Government and they may not be tax-exempt.