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Families of Spinal Muscular Atrophy


Families of Spinal Muscular Atrophy
925 Busse Road
Elk Grove Village,  IL  60007
Tel: 800-886-1762
Fax: 847-367-7623
Email: info@fsma.org
http://www.curesma.org

Description: International non-profit foundation dedicated to accelerating the development of a treatment or cure for SMA through the funding of research, drug discovery programs, and clinical trials. Assists families through informational programs and support services; sponsors an equipment pool; and educates the public and the medical community about SMA.



National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.