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Moebius Syndrome Foundation


Moebius Syndrome Foundation
P.O. Box 147
Pilot Grove,  MO  65276
Tel: 660-834-3406
Email: vickimc@iland.net
http://www.moebiussyndrome.com

Description: Non-profit organization that provides individuals and families with a support network; promotes public and professional education about the disorder, and promotes and funds research.



National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.