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Lowe Syndrome Association

Lowe Syndrome Association
P.O. Box 864346
Plano,  TX  75086
Tel: 972-733-1338

Description: Provides information, fosters communication among families, and supports medical research on Lowe syndrome. Activities include conferences, a research grant program, a newsletter and other publications.

National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.