4340 East West Highway
Bethesda, MD 20814
Tel: 301-202-3811; 888-598-3789
Non-profit association that provides support, education, and advocacy programs for families and professionals.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and their families. They may offer patient and professional information and education materials, sponsor meetings and scientific workshops, fund research, and provide referrals to chapters and support groups.