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Other Miscellaneous Resources


Alliance for Aging Research
750 17th Street, N.W.
Suite 1100
Washington,  DC  20006
Tel: 202-293-2856
Fax: 202-785-8574
Email: info@agingresearch.org
http://www.agingresearch.org

Description: Independent, not-for-profit citizen advocacy organization that works to promote medical research into human aging and to improve the health and independence of older Americans through public and private research.
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American Cancer Society
National Home Office
250 Williams Street, NW
Atlanta,  GA  30303-1002
Tel: 800-ACS-2345 (227-2345)
http://www.cancer.org

Description: Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
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Brave Kids [For Children With Special Needs]
1825 K Street NW
Suite 600
Washington,  DC  20006
Tel: 800-872-5827
Email: info@ucp.org
http://www.bravekids.org

Description: Non-profit organization that serves the needs of children with chronic and life-threatening illnesses and disabilities. Provides a comprehensive directory of health services, relevant medical information from healthcare professionals and message boards for children with special needs. Brave Kids also provides educational outreach and family resource centers to assist parents in locating healthcare resources for their ill children.
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Cancer Care
275 Seventh Avenue
New York,  NY  10001
Tel: Business: 212-712-8400 Services: 800-813-HOPE (4673)
Fax: 212-712-8495
Email: info@cancercare.org
http://www.cancercare.org

Description: Provides free professional support to people with cancer, family members, loved ones, and the bereaved, all across the country. Services include: counseling, support groups, educational programs, publications, and financial assistance.
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Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas,  TX  75240
Tel: 800-535-3643 214-570-9099
Fax: 214-570-8811
Email: contactCCA@ccakids.com
http://www.ccakids.com

Description: Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.
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Children's Neurobiological Solutions (CNS) Foundation
1223 Wilshire Bvld. #937
Santa Monica,  CA  90403
Tel: 866-CNS-5580 (267-5580); (310) 889-8611
Email: info@cnsfoundation.org
http://www.cnsfoundation.org

Description: National, non-profit organization whose mission is to accelerate the development of brain repair therapies and cures by supporting cutting-edge collaborative research on brain damage due to childhood illness, injury, or any other cause. Provides information and resources for families and health care providers.
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Compassionate Friends
P.O. Box 3696
Oak Brook,  IL  60522-3696
Tel: Toll free 877-969-0010
Fax: 630-990-0246
Email: nationaloffice@compassionatefriends.org
http://www.compassionatefriends.org

Description: National, independent, nonprofit, self-help support organization offering friendship and understanding to families grieving the death of a child of any age, from any cause. There are no membership fees or dues, and parents, grandparents, and adult siblings are welcome.
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Dana Foundation
505 Fifth Avenue
6th Floor
New York,  NY  10017
Tel: 212-223-4040
Fax: 212-593-7623
Email: danainfo@dana.org
http://www.dana.org

Description: Supports brain research through grants, educates the public about the successes and potential of brain research, and produces free publications.
295

Friend's Health Connection
P.O. Box 114
New Brunswick,  NJ  08903
Tel: 732-418-1811 800-483-7436
Fax: 732-249-9897
Email: info@friendshealthconnection.org
http://www.friendshealthconnection.org

Description: Non-profit support network that connects people with similar health problems and helps individuals cope with illness through the power of friendship.
627

Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington,  DC  20008-2369
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553
Email: info@geneticalliance.org
http://www.geneticalliance.org

Description: International coalition representing 600 consumer and professional organizations. Supports individuals and families with genetic conditions; educates the public; and advocates for consumer-informed public policies.
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Health Resources and Services Administration (HRSA) Information Center
U.S. Department of Health and Human Services
Parklawn Bldg., 5600 Fishers Lane
Rockville,  MD  20857
Tel: 888-Ask-HRSA (275-4772)
Email: ask@hrsa.gov
http://www.ask.hrsa.gov
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Human Growth Foundation
997 Glen Cove Avenue
Suite 5
Glen Head,  NY  11545
Tel: 800-451-6434
Fax: 516-671-4055
Email: hgf1@hgfound.org
http://www.hgfound.org

Description: Voluntary, non-profit organization dedicated to helping medical science better understand the process of growth.
139

International RadioSurgery Association
2960 Green Street
P.O. Box 5186
Harrisburg,  PA  17110
Tel: 717-260-9808
Fax: 717-260-9809
Email: irsa@irsa.org
http://www.irsa.org

Description: Proactive patient organization providing information and referrals on Gamma Knife, Linac, and particle beam radiosurgery for brain tumors, arteriovenous malformations (AVMs), and neurological pain and movement disorders.
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National Council on Patient Information and Education
200-A Monroe Street
Suite 201
Rockville,  MD  20850
Tel: 301-340-3940
Fax: 301-340-3944
Email: ncpie@ncpie.info
http://www.talkaboutrx.org

Description: Coalition of nearly 150 organizations committed to safer, more effective medicine use through better communication. Additional website is www.bemedwise.org.
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National Health Council
1730 M Street, NW
Suite 500
Washington,  DC  20036-3910
Tel: 202-785-3910
Fax: 202-785-5923
Email: info@nhcouncil.org
http://www.nationalhealthcouncil.org

Description: Association of voluntary health agencies, businesses, and not-for-profit organizations. Sponsors awareness campaigns to promote the health of all people and to advance medical research and the voluntary health movement.
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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury,  CT  06810
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Email: orphan@rarediseases.org
http://www.rarediseases.org

Description: Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
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National Vaccine Information Center
407 Church Street
Suite H
Vienna,  VA  22180
Tel: 703-938-0342
Fax: 703-938-5768
Email: contactNVIC@gmail.com
http://www.nvic.org

Description: Non-profit organization dedicated to the prevention of vaccine injuries and deaths through public education and advocacy programs.
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Research!America
1101 King Street
Suite 520
Alexandria,  VA  22314-2960
Tel: 703-739-2577
Fax: 703-739-2372
Email: info@researchamerica.org
http://www.researchamerica.org

Description: Research!America is the nation's largest 501(c)(3) public education and advocacy alliance working to make research to improve health a higher national priority. Founded in 1989, Research!America is supported by 400 member institutions, businesses and organizations that together represent the voices of more than 125 million Americans. Our public opinion polls, advocacy programs and publications reach the public and decision makers to help advance medical, health and scientific research.
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