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Other Miscellaneous Resources

Alliance for Aging Research
750 17th Street, N.W.
Suite 1100
Washington,  DC  20006
Tel: 202-293-2856
Fax: 202-785-8574

Description: Independent, not-for-profit citizen advocacy organization that works to promote medical research into human aging and to improve the health and independence of older Americans through public and private research.

American Brain Coalition
6257 Quantico Lane N.
Maple Grove,  MN  55331
Tel: 763-557-2913
Fax: 860-586-7550

Description: Nonprofit organization comprised of more than 85 of the United States’ leading professional neurological, psychological, and psychiatric associations and patient organizations, clinicians, researchers, industry, and government agencies. Seeks to advance the understanding of the function of the brain, and to reduce the burden of brain disorders through public advocacy.

American Cancer Society
National Home Office
250 Williams Street, NW
Atlanta,  GA  30303-1002
Tel: 800-ACS-2345 (227-2345)

Description: Nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.

Brave Kids [For Children With Special Needs]
1825 K Street NW
Suite 600
Washington,  DC  20006
Tel: 800-872-5827

Description: Non-profit organization that serves the needs of children with chronic and life-threatening illnesses and disabilities. Provides a comprehensive directory of health services, relevant medical information from healthcare professionals and message boards for children with special needs. Brave Kids also provides educational outreach and family resource centers to assist parents in locating healthcare resources for their ill children.

Cancer Care
275 Seventh Avenue
New York,  NY  10001
Tel: Business: 212-712-8400; Services: 800-813-HOPE (4673)
Fax: 212-712-8495

Description: Provides free professional support to people with cancer, family members, loved ones, and the bereaved, all across the country. Services include: counseling, support groups, educational programs, publications, and financial assistance.

Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas,  TX  75240
Tel: 800-535-3643; 214-570-9099
Fax: 214-570-8811

Description: Non-profit organization dedicated to improving the quality of life for people with facial differences and their families.

Compassionate Friends
1000 Jorie Boulevard
Suite 140
Oak Brook,  IL  60522-3696
Tel: 877-969-0010
Fax: 630-990-0246

Description: National, independent, nonprofit, self-help support organization offering friendship and understanding to families grieving the death of a child of any age, from any cause. There are no membership fees or dues, and parents, grandparents, and adult siblings are welcome.

Dana Foundation
505 Fifth Avenue
6th Floor
New York,  NY  10017
Tel: 212-223-4040
Fax: 212-593-7623

Description: Supports brain research through grants, educates the public about the successes and potential of brain research, and produces free publications.

Friend's Health Connection
P.O. Box 114
New Brunswick,  NJ  08903
Tel: 732-418-1811; 800-483-7436
Fax: 732-249-9897

Description: Non-profit support network that connects people with similar health problems and helps individuals cope with illness through the power of friendship.

Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington,  DC  20008-2369
Tel: 202-966-5557; 800-336-GENE (4363)
Fax: 202-966-8553

Description: International coalition representing 600 consumer and professional organizations. Supports individuals and families with genetic conditions; educates the public; and advocates for consumer-informed public policies.

Health Resources and Services Administration (HRSA) Information Center
U.S. Department of Health and Human Services
Parklawn Bldg., 5600 Fishers Lane
Rockville,  MD  20857
Tel: 888-Ask-HRSA (275-4772)

Human Growth Foundation
997 Glen Cove Avenue
Suite 5
Glen Head,  NY  11545
Tel: 800-451-6434
Fax: 516-671-4055

Description: Voluntary, non-profit organization dedicated to helping medical science better understand the process of growth.

International RadioSurgery Association
2960 Green Street
P.O. Box 5186
Harrisburg,  PA  17110
Tel: 717-260-9808
Fax: 717-260-9809

Description: Proactive patient organization providing information and referrals on Gamma Knife, Linac, and particle beam radiosurgery for brain tumors, arteriovenous malformations (AVMs), and neurological pain and movement disorders.

National Council on Patient Information and Education
200-A Monroe Street
Suite 212
Rockville,  MD  20850
Tel: 301-340-3940
Fax: 301-340-3944

Description: Coalition of nearly 150 organizations committed to safer, more effective medicine use through better communication. Additional website is

National Health Council
1730 M Street, NW
Suite 500
Washington,  DC  20036-3910
Tel: 202-785-3910
Fax: 202-785-5923

Description: Association of voluntary health agencies, businesses, and not-for-profit organizations. Sponsors awareness campaigns to promote the health of all people and to advance medical research and the voluntary health movement.

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury,  CT  06810
Tel: 203-744-0100; Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291

Description: Federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

Pediatric Brain Foundation (formerly Children's Neurobiological Solutions)
2144 E. Republic Road
Building B, Suite 202
Springfield,  MO  65804
Tel: (417)887-4242

Description: Facilitates science for and educates parents of children with neurological conditions, as well as educating public officials on the critical importance of funding pediatric neurological research

1101 King Street
Suite 520
Alexandria,  VA  22314-2960
Tel: 703-739-2577
Fax: 703-739-2372

Description: Research!America is the nation's largest 501(c)(3) public education and advocacy alliance working to make research to improve health a higher national priority. Founded in 1989, Research!America is supported by 400 member institutions, businesses and organizations that together represent the voices of more than 125 million Americans. Our public opinion polls, advocacy programs and publications reach the public and decision makers to help advance medical, health and scientific research.