MDCC November 9, 2005 Meeting Agenda

Muscular Dystrophy Coordinating Committee
Embassy Suites at Chevy Chase
Friendship Heights, Maryland
November 9, 2005
AGENDA

8:00-8:30          Continental Breakfast

8:30-9:30          Welcome and Member Introductions
                        Stephen I. Katz, M.D., Ph.D.
                        MDCC Chair and Director, NIAMS

9:30-9:50          Wellstone Center Progress Report
                        Glen Nuckolls, Ph.D.
                        Program Director, NIAMS

9:50-10:05        Break

10:05-11:20      MDCC Scientific Working Group and the Action Plan for the Muscular Dystrophies
                        John Porter, Ph.D.
                        Program Director, NINDS

11:20-11:40      Translational Research in Muscular Dystrophy: The MDA TRAC
                        Sharon Hesterlee, Ph.D.
                        Scientific Director, Muscular Dystrophy Association

11:40-12:00      Translational Research in Muscular Dystrophy: The PPMD
                        Pat Furlong
                        President, Parents Project Muscular Dystrophy
                        and
                        Lee Sweeney, Ph.D.
                        University of Pennsylvania

12:00-12:30      Lunch

12:30-12:50      Translational Research in Muscular Dystrophy: The NIH
                        Story Landis, Ph.D.
                        Director, NINDS
                        and
                        John Porter, Ph.D.
                        Program Director, NINDS

12:50-1:10        Translational Research in Muscular Dystrophy: The CDMRP
                        Col. Ken Bertram, M.D., Ph.D.
                        Director, Congressionally Directed Medical Research Programs

1:10-1:30          Scientific Update: Facioscapulohumeral Muscular Dystrophy
                        Rune Frants, Ph.D.
                        Leiden University Medical Center

1:30-1:45          Break

1:45-2:05          Scientific Update: Emery-Dreifuss Muscular Dystrophy
                        Katherine Wilson, Ph.D.
                        Johns Hopkins University

2:05-2:25          FSH Society Strategies: Research Grant and Meeting Programs
                        Daniel Perez
                        President, FSHD Society

2:25-3:00          Public Comment Session and Closing Comments