MDCC November 30, 2009 Agenda

Eighth Annual Meeting of the Muscular Dystrophy Coordinating Committee
Hyatt Regency Bethesda
One Bethesda Metro Center, Bethesda, MD
November 30, 2009

8:00-8:30	Continental Breakfast
8:30-8:45	Welcome, Introductions, and Conflict of Interest Statement Story Landis, MDCC Chair, NINDS John Porter, MDCC Executive Secretary, NINDS
8:45-9:15	NIH Annual Overview John Porter, NINDS
9:15-9:45	Paul D. Wellstone Muscular Dystrophy Cooperative Research Center Network Glen Nuckolls, NIAMS
9:45-10:20	Bringing Down the Barriers in Translational Medicine in Inherited Neuromuscular Diseases-TREAT-NMD/NIH Brussels Conference Stephen Lynn, TREAT-NMD (with comments from Conference participants Kurt Fischbeck, Amelie Gubitz, Glen Nuckolls, John Porter, and Anne Rutkowski)
10:20-10:35	Break
10:35-10:45	National Institute of Disability and Rehabilitation Research/Department of Education Report Theresa San Agustin
10:45-11:05	Centers for Disease Control and Prevention Report Edwin Trevathan, CDC
11:05-11:25	Myotonic Dystrophy Report Shannon Lord, Patient Representative
11:25-12:00	Revisiting the MDCC Action Plan for the Muscular Dystrophies John Porter, NINDS
12:00-12:30	Lunch
12:30-12:100	FSHD Report Daniel Perez, FSH Society
12:100-1:10	Muscular Dystrophy Association Report Valerie Cwik, MDA
1:10-1:30	Health Resources and Services Administration Report Sara Copeland, HRSA
1:30-1:100	Congressionally Directed Medical Research Programs/Department of Defense Report Marielena McGuire, DoD
1:100-2:05	Break
2:05-2:25	Congenital Muscular Dystrophy Report Anne Rutkowski, CureCMD
2:25-2:45	Duchenne Muscular Dystrophy Report Brian Denger, PPMD
2:45-3:10	Future Agendas and Directions for the MDCC Story Landis, NINDS
3:10-3:40	Public Comment Session
3:40	Adjourn

Last updated November 27, 2009