MDCC Roster

Copeland, Sara, M.D.
Medical Officer, Genetics Services Branch
Division of Services for Children with Special Health Need
Maternal and Child Health Bureau
Health Resources and Services Administration

Cwik, Valerie A. M.D.
Medical Director and Senior Vice President for Research
Muscular Dystrophy Association

Denger, Brian
Patient Advocate, Parent Project Muscular Dystrophy

Kaime, Captain E. Melissa, M.D.
Deputy Director
Congressionally Directed Medical Research Programs
US Army Research and Materiel Comman
Department of Defense

Katz, Stephen I., M.D., Ph.D.
Director
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health

Landis, Story C., Ph.D., Chair, MDCC
Director
National Institute of Neurological Disorders and Stroke
National Institutes of Health

Lord, Shannon
Patient Advocate, Myotonic Dystrophy

Perez, Daniel P.
President and Chief Executive Officer
Facioscapulohumeral Society, Inc.
Patient Advocate

Rutkowski, Anne M. M.D.
Vice Chair, Cure CMD

San Agustin, M. Theresa B., M.D.
Rehabilitation Program Specialist
National Institute on Disability and Rehabilitation Research
Department of Education

Shurin, Susan Blakely, M.D.
Acting Director
National Heart, Lung and Blood Institute
National Institutes of Health

Vacant
Administration on Children and Families

Vacant
Centers for Disease Control and Prevention

Vacant
Food and Drug Administration

Vacant
Eunice Kennedy Shriver National Institute of Child Health & Human Development
National Institutes of Health

Porter, John D., Ph.D.
Executive Secretary, MDCC
Program Director, Neuromuscular Disease
National Institute of Neurological Disorders and Stroke
National Institutes of Health