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Von Hippel-Lindau Disease (VHL) Organizations

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Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC   20008-2369
info@geneticalliance.org
http://www.geneticalliance.org
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Von Hippel Lindau Family Alliance
2001 Beacon Street
Suite 208
Boston, MA   02135-7877
info@vhl.org
http://www.vhl.org
Tel: 617-277-5667 800-767-4VHL (4845)
Fax: 858-712-8712

International RadioSurgery Association
2960 Green Street
P.O. Box 5186
Harrisburg, PA   17110
irsa@irsa.org
http://www.irsa.org
Tel: 717-260-9808
Fax: 717-260-9809