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Syringomyelia Organizations

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American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA   95677-0850
ACPA@theacpa.org
http://www.theacpa.org
Tel: 916-632-0922 800-533-3231
Fax: 916-652-8190

American Syringomyelia & Chiari Alliance Project (ASAP)
P.O. Box 1586
Longview, TX   75606-1586
info@asap.org
http://www.asap.org
Tel: 903-236-7079 800-ASAP-282 (272-7282)
Fax: 903-757-7456

Christopher and Dana Reeve Foundation
636 Morris Turnpike
Suite 3A
Short Hills, NJ   07078
informations@christopherreeve.org
http://www.christopherreeve.org
Tel: 973-379-2690 800-225-0292
Fax: 973-912-9433

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Spinal Cord Injury Association
75-20 Astoria Blvd
Suite 120
East Elmhurst, NY   11370-1177
info@spinalcord.org
http://www.spinalcord.org
Tel: 800-962-9629
Fax: 866-387-2196

Paralyzed Veterans of America (PVA)
801 18th Street, NW
Washington, DC   20006-3517
info@pva.org
http://www.pva.org
Tel: 202-USA-1300 (872-1300) 800-555-9140
Fax: 202-785-4452

Spina Bifida Association
4590 MacArthur Blvd. NW
Suite 250
Washington, DC   20007-4266
sbaa@sbaa.org
http://www.spinabifidaassociation.org
Tel: 202-944-3285 800-621-3141
Fax: 202-944-3295

Spinal Cord Society
19051 County Highway 1
Fergus Falls, MN   56537
scs-nc@nc.rr.com
http://scsus.org/
Tel: 218-739-5252 or 218-739-5261
Fax: 218-739-5262

Chiari & Syringomyelia Foundation
29 Crest Loop
Staten Island, NY   10312
info@CSFinfo.org
http://www.csfinfo.org
Tel: 718-966-2593
Fax: 718-966-2593 (Call First)