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Sturge-Weber Syndrome Organizations

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March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD   20892-2510
2020@nei.nih.gov
http://www.nei.nih.gov
Tel: 301-496-5248

Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ   07970
SWF@sturge-weber.org
http://www.sturge-weber.org
Tel: 973-895-4445 800-627-5482
Fax: 973-895-4846

Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY   12110
hvbf@aol.com
http://birthmark.org
Tel: 877-VBF-4646 (823-4646)