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Sturge-Weber Syndrome Organizations

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March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Eye Institute (NEI)
National Institutes of Health, DHHS
31 Center Drive, Rm. 6A32 MSC 2510
Bethesda, MD 20892-2510
Tel: 301-496-5248

Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, NJ 07970
Tel: 973-895-4445 800-627-5482
Fax: 973-895-4846

Vascular Birthmarks Foundation
P.O. Box 106
Latham, NY 12110
Tel: 877-VBF-4646 (823-4646)