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Stiff-Person Syndrome Organizations

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National Rehabilitation Information Center (NARIC)
8400 Corporate Drive
Suite 500
Landover, MD   20785
Tel: 301-459-5900/800-346-2742 301-459-5984 (TTY)
Fax: 301-562-2401

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health, DHHS
31 Center Dr., Rm. 4C02 MSC 2350
Bethesda, MD   20892-2350
Tel: 301-496-8190 877-22-NIAMS (226-4267)