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Rett Syndrome Organizations

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International Rett Syndrome Foundation
4600 Devitt Drive
Cincinnati, OH 45246
Tel: 513-874-1298 800-818-7388

Easter Seals
233 South Wacker Drive
Suite 2400
Chicago, IL 60606
Tel: 312-726-6200 800-221-6827
Fax: 312-726-1494

National Institute of Child Health and Human Development (NICHD)
National Institutes of Health, DHHS
31 Center Drive, Rm. 2A32 MSC 2425
Bethesda, MD 20892-2425
Tel: 301-496-5133
Fax: 301-496-7101

National Institute of Mental Health (NIMH)
National Institutes of Health, DHHS
6001 Executive Blvd. Rm. 8184, MSC 9663
Bethesda, MD 20892-9663
Tel: 301-443-4513/866-415-8051 301-443-8431 (TTY)
Fax: 301-443-4279

Genetic and Rare Diseases Information Center (GARD)
National Institutes of Health, DHHS
P.O. Box 8126
Gaithersburg, MD 20898-8126
Tel: 888-205-2311

Rett Syndrome Research Trust
67 Under Cliff Road
Trumbull, CT 06611
Tel: 203-445-0041