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Pelizaeus-Merzbacher Disease Organizations


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United Leukodystrophy Foundation
224 North 2nd Street, Suite 2
DeKalb, IL 60115
office@ulf.org
http://www.ulf.org
Tel: 815-748-3211; 800-728-5483
Fax: 815-748-0844

Hunter's Hope Foundation [A Leukodystrophy Resource]
P.O. Box 643
Orchard Park, NY 14127
info@huntershope.org
http://www.huntershope.org
Tel: 716-667-1200; 877-984-HOPE (4673)
Fax: 716-667-1212

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100; Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291

Myelin Project
P.O. Box 39
Pacific Palisades, CA 90272
info@myelin.org
http://www.myelin.org
Tel: 800-869-3546; 310-459-1071
Fax: 310-230-4298

PMD Foundation (Pelizaeus-Merzbacher disease)
1 Greentree Center
1000 Lincoln Drive East, suite 201
Marlton, NJ 08053
jeffleonard@pmdfoundation.org
http://www.pmdfoundation.org
Tel: 609-443-9623