| National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT 06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 |
Office of Rare Diseases National Institutes of Health, DHHS 6100 Executive Blvd., 3B01, MSC 7518 Bethesda, MD 20892-7518 http://rarediseases.info.nih.gov Tel: 301-402-4336 |
| National Library of Medicine (NLM) National Institutes of Health, DHHS 8600 Rockville Pike, Bldg. 38, Rm. 2S10 Bethesda, MD 20894 http://www.nlm.nih.gov Tel: 301-496-6308 888-346-3656 |