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Neuroacanthocytosis Organizations

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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Office of Rare Diseases
National Institutes of Health, DHHS
6100 Executive Blvd., 3B01, MSC 7518
Bethesda, MD   20892-7518
http://rarediseases.info.nih.gov
Tel: 301-402-4336

National Library of Medicine (NLM)
National Institutes of Health, DHHS
8600 Rockville Pike, Bldg. 38, Rm. 2S10
Bethesda, MD   20894
http://www.nlm.nih.gov
Tel: 301-496-6308 888-346-3656