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Mucopolysaccharidoses Organizations

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National MPS Society, Inc.
PO Box 14686
Durham, NC   27709-4686
info@mpssociety.org
http://www.mpssociety.org
Tel: 877-MPS-1001 919-806-0101
Fax: 919-806-2055

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA   02135
info@ntsad.org
http://www.ntsad.org
Tel: 800-90-NTSAD (906-8723)
Fax: 617-277-0134

Hunter's Hope Foundation [A Leukodystrophy Resource]
P.O. Box 643
Orchard Park, NY   14127
info@huntershope.org
http://www.huntershope.org
Tel: 716-667-1200 877-984-HOPE (-4673)
Fax: 716-667-1212

Hide and Seek Foundation for Lysosomal Storage Disease Research
6475 East Pacific Coast Highway
Suite 466
Long Beach, CA   90803
info@hideandseek.org
http://www.hideandseek.org
Tel: 877-621-1122
Fax: 818-762-2502