Mucopolysaccharidoses Organizations

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National MPS Society, Inc. PO Box 14686 Durham, NC   27709-4686 info@mpssociety.org http://www.mpssociety.org Tel: 877-MPS-1001 919-806-0101 Fax: 919-806-2055	National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291
National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Boston, MA   02135 info@ntsad.org http://www.ntsad.org Tel: 800-90-NTSAD (906-8723) Fax: 617-277-0134	Hunter's Hope Foundation [A Leukodystrophy Resource] P.O. Box 643 Orchard Park, NY   14127 info@huntershope.org http://www.huntershope.org Tel: 716-667-1200 877-984-HOPE (-4673) Fax: 716-667-1212
Hide and Seek Foundation for Lysosomal Storage Disease Research 6475 East Pacific Coast Highway Suite 466 Long Beach, CA   90803 info@hideandseek.org http://www.hideandseek.org Tel: 877-621-1122 Fax: 818-762-2502