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Mucolipidoses Organizations

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Mucolipidosis IV (ML4) Foundation
3500 Piedmont Road, Suite 500
Atlanta, GA   30305
ML4www@aol.com
http://www.ml4.org
Tel: 877-ML4-5459 (654-5459)

National MPS Society, Inc.
PO Box 14686
Durham, NC   27709-4686
info@mpssociety.org
http://www.mpssociety.org
Tel: 877-MPS-1001 919-806-0101
Fax: 919-806-2055

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA   02135
info@ntsad.org
http://www.ntsad.org
Tel: 800-90-NTSAD (906-8723)
Fax: 617-277-0134

ISMRD-International Advocate For Glycoprotein Storage Diseases
20880 Canyon View Drive
Saratoga, CA   95070
info@ismrd.org
http://www.ismrd.org
Tel: 734-449-1190
Fax: 734-449-9038

Genetic Alliance
4301 Connecticut Avenue, N.W.
Suite 404
Washington, DC   20008-2369
info@geneticalliance.org
http://www.geneticalliance.org
Tel: 202-966-5557 800 336-GENE (4363)
Fax: 202-966-8553

National Society of Genetic Counselors
401 N. Michigan Avenue
Chicago, IL   60611
nsgc@nsgc.org
http://www.nsgc.org
Tel: 312-321-6834
Fax: 312-673-6972