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Moebius Syndrome Organizations

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Moebius Syndrome Foundation
P.O. Box 147
Pilot Grove, MO   65276
vickimc@iland.net
http://www.moebiussyndrome.com
Tel: 660-834-3406

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

Children's Craniofacial Association
13140 Coit Road
Suite 517
Dallas, TX   75240
contactCCA@ccakids.com
http://www.ccakids.com
Tel: 800-535-3643 214-570-9099
Fax: 214-570-8811

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291