Metachromatic Leukodystrophy Organizations

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The Arc of the United States 1825 K Street, NW Suite 1200 Washington, DC   20006 Info@thearc.org http://www.thearc.org Tel: 202-534-3700 800-433-5255 Fax: 202-534-3731	Myelin Project P.O. Box 39 Pacific Palisades, CA   90272 info@myelin.org http://www.myelin.org Tel: 800-869-3546 310-459-1071 Fax: 310-230-4298
National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291	National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Boston, MA   02135 info@ntsad.org http://www.ntsad.org Tel: 800-90-NTSAD (906-8723) Fax: 617-277-0134
United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL   60178 office@ulf.org http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432	MLD Foundation 21345 Miles Drive West Linn, OR   97068 info@MLDFoundation.org http://www.mldfoundation.org Tel: 800-617-8387 503-656-4808