Muscular Dystrophy Organizations

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Muscular Dystrophy Association 3300 East Sunrise Drive Tucson, AZ   85718-3208 mda@mdausa.org http://www.mda.org Tel: 520-529-2000 800-572-1717 Fax: 520-529-5300	Parent Project Muscular Dystrophy (PPMD) 401 Hackensack Avenue, 9th Floor Hackensack, NJ   07601 info@parentprojectmd.org http://www.parentprojectmd.org Tel: 800-714-KIDS (5437) Fax: 201-944-9987
Cure CMD P.O. Box 701 Olathe, KS   66051 info@curecmd.com http://www.curecmd.org Tel: 1-866-400-3626	Facioscapulohumeral Muscular Dystrophy (FSH) Society 64 Grove Street Watertown, MA   02472 info@fshsociety.org http://www.fshsociety.org Tel: 617-658-7877 Fax: 617-658-7879
Coalition to Cure Calpain 3 (C3) 15 Compo Parkway Westport, CT   06880 info@curecalpain3.org http://www.curecalpain3.org/ Tel: 203-221-1611 Fax: 734-668-4755	International Myotonic Dystrophy Organization P.O. Box 1121 Sunland, CA   91041-1121 info@myotonicdystrophy.org http://www.myotonicdystrophy.org Tel: 818-951-2311 866-679-7954
Jain Foundation 2310 130th Ave NE Suite B101 Bellevue, WA   98005 ehwang@jain-foundation.org https://www.jain-foundation.org/ Tel: 425-882-1440 Fax: 425-658-1703	National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) National Institutes of Health, DHHS 31 Center Dr., Rm. 4C02 MSC 2350 Bethesda, MD   20892-2350 NIAMSinfo@mail.nih.gov http://www.niams.nih.gov Tel: 301-496-8190 877-22-NIAMS (226-4267)
National Institute of Child Health and Human Development (NICHD) National Institutes of Health, DHHS 31 Center Drive, Rm. 2A32 MSC 2425 Bethesda, MD   20892-2425 http://www.nichd.nih.gov Tel: 301-496-5133 Fax: 301-496-7101	Centers for Disease Control and Prevention (CDC) U.S. Department of Health and Human Services 1600 Clifton Road, N.E. Atlanta, GA   30333 inquiry@cdc.gov http://www.cdc.gov Tel: 800-311-3435 404-639-3311/404-639-3543