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Muscular Dystrophy Organizations

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Muscular Dystrophy Association
3300 East Sunrise Drive
Tucson, AZ   85718-3208
mda@mdausa.org
http://www.mda.org
Tel: 520-529-2000 800-572-1717
Fax: 520-529-5300

Parent Project Muscular Dystrophy (PPMD)
401 Hackensack Avenue, 9th Floor
Hackensack, NJ   07601
info@parentprojectmd.org
http://www.parentprojectmd.org
Tel: 800-714-KIDS (5437)
Fax: 201-944-9987

Cure CMD
P.O. Box 701
Olathe, KS   66051
info@curecmd.com
http://www.curecmd.org
Tel: 1-866-400-3626

Facioscapulohumeral Muscular Dystrophy (FSH) Society
64 Grove Street
Watertown, MA   02472
info@fshsociety.org
http://www.fshsociety.org
Tel: 617-658-7877
Fax: 617-658-7879

Coalition to Cure Calpain 3 (C3)
15 Compo Parkway
Westport, CT   06880
info@curecalpain3.org
http://www.curecalpain3.org/
Tel: 203-221-1611
Fax: 734-668-4755

Myotonic Dystrophy Foundation
P.O. Box 29543
San Francisco, CA   94129
info@myotonic.org
www.myotonic.org
Tel: 86-MYOTONIC 415-800-7777

Jain Foundation
9725 Third Avenue NE
Suite 204
Seattle, WA   98115
sshira@jain-foundation.org; admin@jain-foundation
https://www.jain-foundation.org/
Tel: 425-882-1440
Fax: 425-658-1703

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health, DHHS
31 Center Dr., Rm. 4C02 MSC 2350
Bethesda, MD   20892-2350
NIAMSinfo@mail.nih.gov
http://www.niams.nih.gov
Tel: 301-496-8190 877-22-NIAMS (226-4267)

National Institute of Child Health and Human Development (NICHD)
National Institutes of Health, DHHS
31 Center Drive, Rm. 2A32 MSC 2425
Bethesda, MD   20892-2425
http://www.nichd.nih.gov
Tel: 301-496-5133
Fax: 301-496-7101

Centers for Disease Control and Prevention (CDC)
U.S. Department of Health and Human Services
1600 Clifton Road, N.E.
Atlanta, GA   30333
inquiry@cdc.gov
http://www.cdc.gov
Tel: 800-311-3435 404-639-3311/404-639-3543