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Lipid Storage Diseases Organizations

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Fabry Support & Information Group
108 NE 2nd Street, Ste. C
P.O. Box 510
Concordia, MO   64020-0510
info@fabry.org
http://www.fabry.org
Tel: 660-463-1355
Fax: 660-463-1356

National Gaucher Foundation
2227 Idlewood Road, Suite 12
Tucker, GA   30084
ngf@gaucherdisease.org
http://www.gaucherdisease.org
Tel: 800-504-3189
Fax: 770-934-2911

Children's Gaucher Research Fund
P.O. Box 2123
Granite Bay, CA   95746-2123
research@childrensgaucher.org
http://www.childrensgaucher.org
Tel: 916-797-3700
Fax: 916-797-3707

United Leukodystrophy Foundation
224 North 2nd Street, Suite 2
DeKalb, IL   60115
office@ulf.org
http://www.ulf.org
Tel: 815-748-3211 800-728-5483
Fax: 815-748-0844

National Niemann-Pick Disease Foundation, Inc.
P.O. Box 49
401 Madison Avenue, Suite B
Ft. Atkinson, WI   53538
nnpdf@nnpdf.org
http://www.nnpdf.org
Tel: 920-563-0930 877-CURE-NPC (287-3672)
Fax: 920-563-0931

Ara Parseghian Medical Research Foundation [For Niemann-Pick Type C Disease]
3530 East Campo Abierto
Suite 105
Tucson, AZ   85718-3327
victory@parseghian.org
http://www.parseghian.org
Tel: 520-577-5106
Fax: 520-577-5212

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA   02135
info@ntsad.org
http://www.ntsad.org
Tel: 800-90-NTSAD (906-8723)
Fax: 617-277-0134

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY   10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488 888-MODIMES (663-4637)
Fax: 914-428-8203

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

Hide and Seek Foundation for Lysosomal Storage Disease Research
6475 East Pacific Coast Highway
Suite 466
Long Beach, CA   90803
info@hideandseek.org
http://www.hideandseek.org
Tel: 877-621-1122
Fax: 818-762-2502

ISMRD-International Advocate For Glycoprotein Storage Diseases
20880 Canyon View Drive
Saratoga, CA   95070
info@ismrd.org
http://www.ismrd.org
Tel: 734-449-1190
Fax: 734-449-9038

National Fabry Disease Foundation
4301 Connecticut Avenue, NW
Suite 404
Washington, DC   20008-2369
info@fabrydisease.org
http://www.fabrydisease.org
Tel: 800-651-9131
Fax: 800-651-9135