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Leukodystrophy Organizations

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National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT   06810
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

National Tay-Sachs and Allied Diseases Association
2001 Beacon Street
Suite 204
Boston, MA   02135
info@ntsad.org
http://www.ntsad.org
Tel: 800-90-NTSAD (906-8723)
Fax: 617-277-0134

United Leukodystrophy Foundation
224 North 2nd Street, Suite 2
DeKalb, IL   60115
office@ulf.org
http://www.ulf.org
Tel: 815-748-3211 800-728-5483
Fax: 815-748-0844

Hunter's Hope Foundation [A Leukodystrophy Resource]
P.O. Box 643
Orchard Park, NY   14127
info@huntershope.org
http://www.huntershope.org
Tel: 716-667-1200 877-984-HOPE (-4673)
Fax: 716-667-1212

Myelin Project
P.O. Box 39
Pacific Palisades, CA   90272
info@myelin.org
http://www.myelin.org
Tel: 800-869-3546 310-459-1071
Fax: 310-230-4298

MLD Foundation
21345 Miles Drive
West Linn, OR   97068
info@MLDFoundation.org
http://www.mldfoundation.org
Tel: 800-617-8387 503-656-4808