Lesch-Nyhan Syndrome Organizations

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Purine Research Society 5424 Beech Avenue Bethesda, MD   20814-1730 PurineResearchSociety@verizon.net http://www.purineresearchsociety.org Tel: 301-530-0354 Fax: 301-564-1180.	National Organization for Rare Disorders (NORD) 55 Kenosia Avenue Danbury, CT   06810 orphan@rarediseases.org http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291